Freya Doyle attends St. Michael's House Special National School in Baldoyle. The family of the 10-year-old girl living with a rare form of epilepsy are on a mission to raise funds so they can adapt their Donaghmede home to meet her needs.
Freya is one of just four children in Ireland with genetic mutation called STXBP1 which causes a form of epilepsy called Ohtahara Syndrome. It means she cannot walk, talk, feed or toilet herself and requires round-the-clock care from her doting mum Ciara with the help of her dad and two siblings.
Dad Greg confirms “Freya now weighs 25.2kg. We really need a bedroom and wet room downstairs and a ceiling track hoist to safely transfer Freya from her wheelchair to shower and into bed. It is no longer safe for us and it’s extremely difficult for us to carry Freya upstairs to the bathroom and bedroom. We urgently need structural changes to our family home which we estimate will cost €80-€100,000.”
Family friend Tracey Gill has set up a GoFundMe page to support the building costs required.
https://ie.gofundme.com/f/freyas-fairies-need-your-help